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Development and assessment of the psychometric properties of a new scale (15 item PSB-CL) to monitor the psychosocial burden of chronic lymphoedema in filariasis

Authors:

J. Ruben ,

University of Ruhuna, Galle, LK
About J.
Departments of Parasitology, Faculty of Medicine
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T. C. Yahathugoda,

University of Ruhuna, Galle, LK
About T. C.
Departments of Parasitology, Faculty of Medicine
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M. V. Weerasooriya,

University of Ruhuna, Galle, LK
About M. V.
Departments of Parasitology, Faculty of Medicine
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M. W. Punchihewa,

Office of Regional Director Health Services, Galle, LK
About M. W.
Anti Filariasis Campaign
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C. Senadheera,

University of Ruhuna, Galle, LK
About C.
Departments of Psychiatry, Faculty of Medicine
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K. G. Somasiri,

University of Ruhuna, Galle, LK
About K. G.
Departments of Physiology, Faculty of Medicine
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B. Perera

University of Ruhuna, Galle, LK
About B.
Departments of Community Medicine, Faculty of Medicine
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Abstract

Introduction: Chronic lymphoedema (CL) of lymphatic filariasis causes severe psychosocial burdens (PSB) to its victims. Currently-established scales to measure PSB of CL are not culturally adaptable to Sri Lankan patients. In this study, we developed and assessed the psychometric properties of a disease-specific questionnaire (15 item PSB-CL).

 

Methods and Results: A detailed literature search was done to identify scales related to PSB of CL patients. Questions were developed through collected expressions from semi-structured interviews with 46 CL patients. A response scale was developed from the collected pool of possible responses, and they were scored using a visual analogue scale. Face and content validity were carried out using an initial questionnaire (31 questions). They were reduced to 27 by removing unclear, ambiguous, double-stranded ones and those with value-laden words. This new questionnaire was administrated on 92 patients by a group of doctors for item reduction by the analysis of internal consistency (Cronbach’s alpha > 0.7) and factor analysis (Principal Component Analysis; Eigenvalues > 1). After the patient survey and factor analysis, the final questionnaire PSB-CL was formed with 15 questions that had four subscales (factors), physical, social, fear and humiliation. Patients (n=92) reported quite a large percentage (42% - 69%) of problems under each dimension.

 

Conclusion: The scale to measure the psychosocial burden of chronic lymphoedema in lymphatic filariasis patients in Sri Lanka. Further validation of the tool is needed.

How to Cite: Ruben, J., Yahathugoda, T.C., Weerasooriya, M.V., Punchihewa, M.W., Senadheera, C., Somasiri, K.G. and Perera, B., 2020. Development and assessment of the psychometric properties of a new scale (15 item PSB-CL) to monitor the psychosocial burden of chronic lymphoedema in filariasis. Galle Medical Journal, 25(2), pp.38–47. DOI: http://doi.org/10.4038/gmj.v25i2.8022
Published on 16 Jun 2020.
Peer Reviewed

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