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Quality of life of 8- to 12-year-old children with autism spectrum disorder in Colombo district, Sri Lanka; perspective of primary caregivers

Authors:

Y. de Silva ,

Colombo South Teaching Hospital, Kalubowila, LK
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Saraji Wijesekara

University of Sri Jayewardenepura, Gangodawila, Nugegoda, LK
About Saraji
Faculty of Medical Sciences
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Abstract

Introduction: Autism spectrum disorder (ASD) is a lifelong neurodevelopmental disorder characterized by impairments in social interaction, verbal and nonverbal communication, and a restricted repertoire of activities and interests. As it is a condition which persists in one's entire life, maintaining a good Quality of Life (QoL) in such children is essential. The objective of the study was to assess the QoL in 8 to12- year- old children diagnosed with ASD who are attending autism clinics in two major hospitals in Colombo District, Sri Lanka.

 

Methods: A descriptive study was carried out among the caregivers of 8 to12- year-old children with ASD attending two major hospitals in Colombo. Paediatric Quality of Life Inventory (PedsQL) was used to assess the QoL in the children, according to the perception of the caregivers.

 

Results: Thirty-five caregivers were included in the study. Majority of the caregivers were mothers. Mean (SD) age of the children studied was 9.6 (±1.6) years. The median total score was 64.44. The median physical functioning, median emotional functioning, the median social functioning and the median social functioning scores were 81.25, 65.0, 40.0 and 35.0 respectively. The median psychosocial functioning score derived by combined scores of emotional, social and school functioning was 48.0, and it was lower than the median physical functioning score.

 

Conclusion: The QoL of this group of children with ASD attending autism clinics in two major hospitals in Colombo district were poor with the psychosocial component being more affected than the physical component.

How to Cite: de Silva, Y. and Wijesekara, S., 2021. Quality of life of 8- to 12-year-old children with autism spectrum disorder in Colombo district, Sri Lanka; perspective of primary caregivers. Galle Medical Journal, 26(4), pp.152–157. DOI: http://doi.org/10.4038/gmj.v26i4.8072
Published on 30 Dec 2021.
Peer Reviewed

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